• Question: do u maybe get a little sad when u find out that so many young children under two die from it and they couldn't be saved , if not why.

    Asked by Curly Kid to Ali on 11 Nov 2014.
    • Photo: Alison Thomson

      Alison Thomson answered on 11 Nov 2014:


      Hi Curly Kid,

      Yes I do find it really sad. I’m actually going to a conference in the summer to meet some children with SMA and their families, and I get the feeling I’ll be really sad by the end of it!
      This gives me the motivation to work harder though, because I want to minimise the number of children who suffer!

      Thanks for asking!

      Ali

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